Neurodiversity Approaches and Autism (ASD): A Scoping Review

Ravindra Kumar Kushwaha(1),


(1) Research Scholar, Department of Teacher Education, Halim Muslim PG College, Kanpur (India)
Corresponding Author

Abstract


Neurodiversity is a movement that wants to make us think differently about autism. It disagrees with the idea that autism is a disease and instead sees it as a neurological difference: a person who thinks and feels the world in a different way. This article talks about the ideas behind the neurodiversity approaches to autism spectrum disorder (ASD), as well as the conflicts that have come up around these approaches. For example, some people say that neurodiversity approaches only look at society and don't consider the role of individual traits in ASD. This study agrees with other research that both individual and social factors play a role in ASD. This article will be mostly about how to deal with neurodiversity. But even this use of "neurodiversity" is hard for ASD to define.


Keywords


Autism (ASD), Neurodiversity Approaches

References


Armstrong, T. (2010). Neurodiversity: Discovering the extraordinary gifts of autism, ADHD, dyslexia, and other brain differences. Da Capo Press.

Asperger, H. (1991). ‘Autistic psychopathy’ in childhood. In U. Frith (Ed., trans.), Autism and Asperger syndrome (pp. 37–92). Cambridge University Press.

Asperger, H. (2020). The mentally abnormal child [supplementary material]. In D. Falk (trans.), Non-complicit: Revisiting Hans Asperger’s career in Nazi-era Vienna (pp. 2573–2584). Springer. https: //doi.org/10.1007/s10803- 019-03981-7.

Blume, H. (1998). Neurodiversity: On the neurological underpinnings of geekdom. The Atlantic. https://www.theatlantic.com/magazine/ archive/1998/09/neurodiversity/305909/.

Ballou, E. P. (2018). What the neurodiversity movement does – and doesn’t – offer. Thinking Person’s Guide to Autism. http://www.thinkingautismguide.com/2018/02/what-neurodiversity-movement-doesand.html.

Bailin, A. (2019). Clearing up some misconceptions about neurodiversity. Scientific American. https: //blogs.scientificamerican.com/observations/clearing-up-some misconceptionsabout-neurodiversity/.

Bölte, S., Lawson, W. B., Marschik, P. B., & Girdler, S. (2021). Reconciling the seemingly irreconcilable: The WHO’s ICF system integrates biological and psychosocial environmental determinants of autism and ADHD – The International Classification of Functioning ICF) allows to model opposed biomedical and neurodiverse views of autism and ADHD within one framework. BioEssays, 43(9), 2000254.

Brechin, A. (2018). Opening the dialectical Pandora’s box. Global Autism Project. https:// www.globalautismproject.org/the-problemwith-functioning-labels-opening-the-dialectical-pandoras-box/.

Bagatell N. (2010). From cure to community: Transforming notions of autism. Ethos, Special Issue: Rethinking Autism, Rethinking Anthropology, 38, 34–58. doi: 10.1111/j.1548- 1352.2009.01080.

Chapman, R. (2020a). Defining neurodiversity for research and practice. In: H. B. Roqvist, N. Chown, & A., Stenning, editors. Neurodiversity Studies: A new critical paradigm (p. 218– 220). Routledge.

Celiberti, D. (2015). An interview with Catherine Maurice, PhD, parent, author, and founding board member of the Association for Science in Autism Treatment. Science in Autism Treatment. https://asatonline.org/research-treatment/interviews/interview-with-catherinemaurice/.

Clements, T. (2017). The problem with the neurodiversity movement. Quillette. https://quillette.com/2017/10/15/problem-neurodiversity-movement/.

Costandi, M. (2019). Against neurodiversity. Aeon. https://aeon.co/essays/why-the-neurodiversity-movement-has-become-harmful.

Constantino, C. D. (2018). What can stutterers learn from the neurodiversity movement? Seminars in Speech and Language, 39(4), 382– 396.

Cappe, E., Wolff, M., Bobet, R., & Adrien, J.L. (2011). Quality of life: a key variable to consider in the evaluation of adjustment of parents of children with autism spectrum disorders and in the development of relevant support and assistance programs. Quality of Life Research, 20, 1279-1294. doi: 10.1007/s11136-011-9861-3.

Dwyer, P. (2019). On neurodiversity, Part III: What is the neurodiversity paradigm? Autistic Scholar. http: //www.autisticscholar.com/ what-is-neurodiversity/.

Dekker, M. (2020). From Exclusion to Acceptance: Independent Living on the Autistic Spectrum. In: Kapp, S., editor. From exclusion to acceptance: Independent living on the autism spectrum. Autistic community and the neurodiversity movement: Stories from the frontline. Palgrave Macmillan. (p. 41–49).

den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23(2), 271–273.

den Houting, J., & Pellicano, E. (2019). A portfolio analysis of autism research funding in Australia, 2008-2017. Journal of Autism and Developmental Disorders, 49(11), 4400–4408

Forest Vivian, A., Des Roches Rosa, S., LogsdonBreakstone, S., Liebowitz, C., Ford, S., Kapp, S., Carey, M., & Bascom, J. (n.d.). Neurodiversity FAQ: A neurodiversity facts and myths primer. Thinking Person’s Guide to Autism. http: //www.thinkingautismguide.com/p/soyoure-doing-story-about.html.

Flynn, J. (2018). Why autism functioning labels are harmful: And what to say instead. The Mighty. https://themighty.com/2018/07/autism-functioning-labels-low-functioninghigh-functioning/.

Griffin, E., & Pollak, D. (2009). Student experiences of neurodiversity in higher education: Insights from the BRAINHE Project. Dyslexia, 15, 23-41. doi: 10.1002/dys.383.

Hiari, T. (2018). Neurodiversity is dead. Now what? Mad in America. https://www.madinamerica.com/2018/04/neurodiversity-deadnow-what/.

Holman, C. (2017). Why the world needs neurodiversity. Neurodivergent Rebel. https://neurodivergentrebel.com/2017/06/24/the-worldneeds-neurodiversity/

Jaarsma, P., & Welin, S. (2012). Autism as a natural human variation: Reflections on the claims of the neurodiversity movement. Health Care Analysis, 20(1), 20–30.

Jones, R., & Meldal, T.O. (2001). Social relationships and Asperger’s syndrome: A qualitative analysis of first-hand accounts. Journal of Intellectual Disabilities, 5, 35–41. doi: 10.1177/146900470100500104.

Jordan, C.J. (2010). Evolution of autism support and understanding via the World Wide Web. Intellectual and Developmental Disabilities, 48, 220-227. doi: 10.1352/1934-9556- 48.3.220.

Krcek, T. E. (2013). Deconstructing disability and neurodiversity: Controversial issues for autism and implications for social work. Journal of Progressive Human Services, 24(1), 4–22.

Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013). Deficit,difference, or both? Autism and neurodiversity. Development Psychology, 49(1), 59–71.

King, G., Cathers, T., Brown, E., Specht, J.A., Willoughby, C., Polgar, J.M.,…Havens, L. (2003). Turning points and protective processes in the lives of people with chronic disabilities. Qualitative Health Research, 13, 184-205. doi: 10.1177/1049732302239598.

Lutz, A. S. F. (2015). Please stop whitewashing autism. Psychology Today. https://www.psychologytoday.com/ca/blog/inspec - trum/201509/please-stop-whitewashing-autism.

Langan, M. (2011). Parental voices and controversies in autism. Disability & Society, 26, 193- 205. doi: 10.1080/09687599.2011.544059.

Mitchell, J. (2019). Parent-blaming and autism: Tragically trending again. National Council on Severe Autism. https://www.ncsautism. org/blog/2019/2/5/parent-blaming-and-autism-tragically-trending-again.

Meadan, H., Halle, J. W., & Ebata, A. T. (2010). Families with children who have autism spectrum disorders: Stress and support. Exceptional Children, 77, 7-36.

Oliver, M. (1990). The politics of disablement. Macmillan Education.

Ortega, F. (2009). The cerebral subject and the challenge of neurodiversity. BioSocieties, 4, 425- 445. doi: 10.1017/S1745855209990287.

Punshon, C., Skirrow, P., & Murphy, G. (2009). The ‘not guilty verdict’ Psychological reactions to a diagnosis of autism in adulthood. Autism, 13, 265-283. doi: 10.1177/1362361309103795.

Robison, J. E. (2013). What is neurodiversity? Psychology Today. https://www.psychologytoday.com/us/blog/my-life-aspergers/201310/ what-is-neurodiversity.

Russell, G., Kelly, S., & Golding, J. (2010). A qualitative analysis of lay beliefs about the aetiology and prevalence of autism spectrum disorders. Child: Care, Health, and Development, 36, 431-436. doi: 10.1111/j.1365-2214.2009.00994.

Russell, G., & Norwich, B. (In press). Dilemmas, diagnosis, and de-stigmatization: Parental perspectives on the diagnosis of autism spectrum disorders. Clinical Child Psychology and Psychiatry. doi: 10.1177/1359104510365203

Singer, J. (2016). Neurodiversity: The birth of an idea. [Kindle edition].

Shakespeare, T., & Watson, N. (2001). The social model of disability: An outdated ideology? In: Barnartt, S. N., Altman, B. M., editors. Exploring theories and expanding methodologies: Where we are and where we need to go.(p. 9–28).

Sequenzia, A. (n.d.). More problems with functioning labels. Ollibean. https://ollibean.com/ problems-functioning-labels/#.

Savarese, R.J., Block, P., Chew, K., Cumberland, C., Duffy, J., Etlinger, S.,…Wilson, J.C. (2010). Parent & sibling roundtable: Neurodiversity and caregiving. Disability Studies Quarterly, Special Issue: Autism and the Concept of Neurodiversity, 30. Retrieved from http://www.dsq-sds.org.

UPIAS [Union of the Physically Impaired Against Segregation] (1975). Fundamental principles of disability. UPIAS.


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DOI: 10.57235/qistina.v2i2.612

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